July 30, 2014

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Home » Articles »   By Emily Rapp

Home in the World

A fatal diagnosis leads to an unexpected transformation

Features My son’s body lacks hexosaminidase A, an enzyme critical for brain development, and his brain is, as they say in the neurology world, “devastated.” Before he dies, Ronan will become paralyzed,...

Wednesday, March 23, 2011 Emily Rapp
 
 
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